Essential Information for Patients Considering Medical Aid in Dying
We recognize that contemplating end-of-life decisions can be a challenging process. The Academy is here to offer support as you explore the option of medical aid in dying. Navigating healthcare systems, finding providers, and managing the process can be unexpectedly complicated and time-consuming. We hope to provide comprehensive information to help you make well-informed choices that align with your values and wishes.
Patients must voluntarily and independently request an evaluation from two participating providers. These providers must confirm that you are an adult resident of a state where medical aid in dying is legal, have a prognosis of six months or less, possess the mental capacity to make your own medical decisions, and are physically able to self-administer the prescribed medication by swallowing or administering the liquid medications into their own gastrointestinal tract. Suffering or having a specific plan is not required, and you are never obligated to take the medication once prescribed.
Verifying eligibility may take considerably longer than the mandated waiting period. If you think you may want this option at some point in your dying process, starting the process early can prevent unnecessary stress or urgency. Being deemed eligible does not require you to take the medications to die; it simply provides you with the option to do so.
Hospice services provide expert symptom management and compassionate support for loved ones, regardless of how your end-of-life journey unfolds. Hospice care—fully covered by Medicare and most insurance plans—ensures that you and your family receive attentive, comprehensive care through the final phase of life, no matter how you die.
Before choosing a hospice, take time to speak with several organizations. Many hospices say they “support” patients considering medical aid in dying, but what that means in practice can vary considerably.
Ask specific questions about their aid-in-dying policies and clinical roles:
• Can their hospice providers serve as the attending or prescribing clinician?
• Are staff trained and supported to provide clinical monitoring and coordination with prescribers?
• Are nurses allowed to prepare the medications and remain present at the bedside during the crucial and tender last moments?
• Do they support alternate (non-oral) medication routes if those become needed?
• If the hospice refers patients to outside providers, what costs might be involved?
Remember that being eligible for hospice does not automatically mean you are eligible for medical aid in dying. If you are not yet eligible, you can ask your provider to remain involved and help identify when a reassessment might be appropriate.
Explore your options, clarify your needs, and always ask for details.
To start the medical aid-in-dying process, a patient must make a direct request to a participating clinician who agrees to act as the attending provider. The attending provider documents the request, evaluates the patient’s legal eligibility (including prognosis, capacity, and ability to self-administer), and counsels the patient about all their end-of-life care options.
Then, a separate consulting or confirming clinician must independently review the patient’s records and verify eligibility. If there are questions about decision-making capacity, an additional assessment by a mental health professional may be required. In certain states, patients must also complete a written request that is witnessed by two individuals. Individuals requiring translation assistance must complete an additional language attestation form.
Once all legal and clinical requirements are met and the waiting period has elapsed, the attending provider may accept the second verbal request, complete final counseling, and issue the aid-in-dying prescription. The medication can be safely held at the pharmacy until the patient chooses to fill it, and delivery is usually prompt. No costs are incurred until the medication is dispensed.
The attending provider and hospice team can help guide the patient, offering support in deciding whether and when to proceed and take the medications to die. Any concerns—especially those suggesting the patient may have lost capacity, or the ability to self-administer, or the need for a dose or route adjustment—should be discussed immediately with the prescribing clinician or their backup.
Eligibility provides the option to take the medications to die; it does not require the patient to use them. If a patient is initially found ineligible, they may be reassessed if their condition changes.
Because confirming eligibility can sometimes take longer than the statutory waiting period, starting the process early can help minimize stress and avoid time pressures.
Aid-in-dying care is generally provided by three main types of clinicians, each differing in insurance acceptance, service fees, bedside availability, and overall responsiveness. The medications themselves are typically paid out of pocket and cost between $600 and $800.
1. Large medical organizations, particularly those with palliative care programs, typically cover aid-in-dying services under insurance, though it may take some time to get an appointment. Some provide the care free of charge, if needed. These services are generally offered through office visits, and in some cases, via telehealth. Bedside support is typically not offered, though they may make referrals to hospices, doulas, or volunteers.
2. Hospices that allow their clinicians to directly serve as attending prescribers do not charge additional fees, as Medicare and federal regulations prohibit billing for these services. If a hospice does not permit its providers to participate, patients may transfer to one that does, though this can delay the process. While some hospices can admit patients quickly, their teams typically take time to understand the needs of each patient and family to ensure competent, individualized care.
3. Independent physicians often provide highly attentive bedside care, including faster response times, home visits, and the ability to manage non-oral medication routes. Most charge a flat fee, though many offer a sliding scale based on need, and a few can bill insurance.
No matter where you receive your aid-in-dying prescription, bedside support is still crucial for end-of-life care. Hospice care is covered by Medicare and most insurance plans at 100%. Some hospices train and support their staff to prepare aid-in-dying medications, provide full monitoring, manage non-oral routes, and provide crucial bedside care during ingestion, while others do not.
The Academy can provide referrals at this link.
If you live in a residential facility, ask about its policies on medical aid in dying.
Skilled nursing facilities are legally permitted to prohibit aid-in-dying within their buildings. Assisted living and similar settings must allow residents to make their own choices in their own apartments or rooms, though the facility may refuse to accept and manage the medications. Policies can vary significantly by facility type.
If aid in dying cannot occur where you currently reside, consider alternative arrangements, such as spending the day at a friend’s or family member’s home.
Short-term rentals or hotels may also be possible, but the hotelier or the property owner should be informed that the patient is seriously ill and likely to die on the premises.
Some patients may decide to move to states where aid in dying is legal so they can have aid-in-dying as an option.
Bear in mind that though residency requirements are typically minimal, the evaluation process and the self-administration of aid-in-dying medication must occur within that state’s borders. Transporting lethal medications across state lines is not legal and could potentially be considered “assisting a suicide” in states where aid-in-dying laws are not in place.
The process and the required move can be very stressful, especially as fragile patients continue to decline. Aid-in-dying can suddenly become unsafe or even impossible. Consider your needs and those of your loved ones very carefully before embarking on this highly complex project.
We have recommendations and referrals for patients who want to consider moving to a state where aid in dying is legal. (Oregon, Washington, California, Vermont, Colorado, New Mexico, Hawaii, etc.)
While it’s always valuable for you and your doctors to discuss your thoughts, hopes, and concerns about the end of life, it may not be practical to make detailed plans for aid in dying at this time—especially if your physicians have indicated that you do not currently have a life-limiting illness or prognosis. Your plans and conversations will likely evolve as your health and care teams change.
Your support for aid-in-dying is deeply appreciated. However, this may or may not become a personal option depending on your future medical circumstances. If managing symptoms becomes difficult, palliative care may help improve your quality of life. When you are closer to meeting the legal criteria for aid in dying, we strongly recommend exploring hospice care, as described above. The Academy can offer guidance and referrals when that time comes.
In the meantime, please read our free patient guide.