Essential Information for Patients Considering Medical Aid in Dying

We recognize that contemplating end-of-life decisions can be an emotionally challenging experience for you and those close to you. The Academy is here to offer support as you explore the option of medical aid in dying. We hope to provide comprehensive information to help you make a well-informed choice that aligns with your values and wishes.
The Academy offers free patient referrals and information.
Please read these details, and continue to the bottom of this page for more resources and downloads
Patients must independently and voluntarily request medical aid in dying from two participating providers, who then assess their eligibility based on legal criteria.
To qualify, individuals must be adult residents of the state, with a terminal diagnosis and prognosis of six months or less, have the capacity to make their own medical decisions, and be physically able to self-administer the prescribed liquid medications either by swallowing or by pushing them into their GI tract through a feeding syringe and tube via PEG, ostomy or small rectal catheter.
State laws impose varying waiting periods from 48 hours to 14 days, and some require a signed and witnessed written request.
Importantly, patients are not required to prove their suffering or commit to a specific date for using the medications. Once eligible, patients are never required to ingest the medicines at any time.
Verifying eligibility may take considerably longer than the minimum waiting period, so it is advisable to start the process early to avoid unnecessary stress or urgency.
Hospice services offer expert symptom control and support for loved ones, no matter how your end-of-life proceeds. Aid in dying can become a non-viable option if you lose mental capacity or the ability to take the medications without assistance. Hospice care, which is covered 100% by Medicare and most insurances, ensures you and your family have attentive end-of-life care, no matter how you die.
Be sure to interview a few hospices before deciding. While most hospices provide “support” for patients considering or using medical aid in dying, the actual services and care provided can vary significantly.
It’s crucial to ask for details about what their providers and clinical staff can and cannot do regarding aid-in-dying. Can the hospice providers act as the attending/prescriber? Can they support non-oral routes, if needed? Are their staff allowed to prepare the medications and remain at the bedside while you take the medications? If they have referrals or work with outside providers, what are the potential costs? How does their Medicare-certified hospice work with external providers?
Some hospices do not allow their providers to participate in aid-in-dying at all, others allow them to act as prescribers or consultants, and some only permit them to act as consultants.
Some hospices permit their nurses to monitor patients, prepare these dangerous medications, manage non-oral routes, and remain at the bedside to provide essential support from ingestion through death, while others do not.
Note: Hospice eligibility does not guarantee eligibility for medical aid in dying. If you are deemed not yet eligible, you may ask your provider to continue to follow and provide guidance about what would indicate a need for reevaluation.
Consider your needs carefully, and ask for the details!
To initiate the process for medical aid in dying, you must first make a direct request to a participating provider who agrees to serve as your “attending” or prescribing clinician. This clinician will document your request in your medical chart and begin the evaluation and counseling process.
A “consulting” or confirming clinician must also review your records and confirm your eligibility. If there are questions about your capacity to make your own medical decisions, an additional capacity evaluation may be required by a mental health professional. In some states, you must complete a written request form witnessed by two others. Patients who require translation will have to complete an additional form.
If the attending/prescribing provider agrees that you meet the legal criteria and you have completed the other steps, they can take the second verbal request and complete the required counseling any time after a mandated waiting period. This completes the eligibility process, and they may write the prescription.
The attending/prescribing provider should continue to follow and provide guidance to their patients as they continue to consider their end-of-life options or hand this off to another clinician. If any questions or concerns arise regarding the patient’s capacity or ability to safely self-ingest, the prescriber or their backup should be called.
Being deemed eligible does not obligate the patient to use the medications; it simply provides them with the option. Patients who are found ineligible may be reevaluated later if their condition changes.
Verifying eligibility may take considerably longer than the minimum waiting period, so it is advisable to start the process early to avoid unnecessary stress or urgency.
Note: Hospice eligibility does not guarantee eligibility for medical aid in dying. If you are deemed not yet eligible, you may ask your provider to continue to follow and provide guidance about what would indicate a need for reevaluation.
If permitted to participate, palliative care practices and other large medical organizations work with insurance and can provide aid-in-dying care, typically through office visits or sometimes via telehealth. However, they would have to rely on your hospice to provide bedside care. If permitted to participate, palliative care practices and other medical organizations work with insurance and can provide aid-in-dying care, typically through office visits or sometimes via telehealth. However, they would have to rely on your hospice, privately hired end-of-life doulas, or volunteers to provide bedside care.
If your hospice allows its internal providers to act as attending prescribers, there should be no additional costs, because Medicare and federal law prohibit charging for this care. However, you will still need to pay for the medicines (approximately $600 to $800), which hospices cannot cover. If your hospice does not allow this, you may be able to transfer to a hospice that does, but this can add delays to your process.
Independent physicians can often work rapidly, manage non-oral routes, make home visits, and provide bedside care. Most charge a flat fee, but some may be willing to use a sliding scale for patients who genuinely need it. Some may also be able to bill insurance.
Consider your needs carefully.
The Academy can provide referrals at this link.
If you live in a facility, be sure to ask about their policies regarding medical aid in dying. Skilled nursing facilities are allowed to “opt out” and not permit aid-in-dying on premises. Other facilities, such as assisted living, must allow you to do what you choose in your own apartment or room, but policies can vary at different types of facilities.
If you cannot proceed with aid in dying in your current location, alternative plans, such as going to a friend or family member’s home for the day, are reasonable options. Short-term rentals (Airbnb) or hotels may also be an option, but they require prior permission from their owners, who should be notified that an expected death may occur, much like notifying them that a hospice patient will be staying on premises.
Some patients may decide to move to states where aid in dying is legal so they can have aid-in-dying as an option. Bear in mind that the evaluation process and the self-administration of aid-in-dying medication must occur within that state’s borders. Transporting lethal medications across state lines is not legal and could potentially be considered “assisting a suicide” in states where aid-in-dying laws are not in place.
The process and the required moving can be stressful. Consider your needs and those of your loved ones carefully before embarking on this complex project.
We have recommendations and referrals for patients who want to consider moving to a state where aid in dying is legal. Please fill our patient intake form.
While it’s always a good idea for you and your doctors to share your thoughts about your end-of-life hopes and fears, it’s not entirely practical to plan too far in advance for aid in dying, especially if your doctors are telling you that you currently don’t have a life-limiting disease or prognosis. Whatever you arrange with your current doctors is likely to change as your condition and care teams change. While you may be politically very supportive of aid in dying (thank you!), this may or may not translate into your reality. Palliative care may be an option if your symptoms are a burden. If and when you are closer to meeting the legally required criteria, we highly recommend you consider (and carefully choose) hospice care (see above). The Academy can provide referrals, if and when that time comes. In the meantime, please read our free patient guide.
For more comprehensive information, see our free Patient Guide to Medical Aid in Dying
Summary of initial patient information
